A SHORT BLOG ABOUT MY EXPERIENCES OF M.E. AND CANCER FOR INTERNATIONAL M.E. AWARENESS DAY 12TH MAY 2015
Four years ago I was diagnosed with cancer, sixteen years after my diagnosis with ME.
It was like landing on a different planet.
I found the care I received after my cancer diagnosis was nothing short of miraculous.
Suddenly I was in a hospital where there were tailored biomedical treatments that offered a good chance of a cure. Consultants, doctors and nurses were all determined to save my life.
The medical establishment was behind me.
On planet ME it had been the opposite. My first GP believed, along with some other misguided doctors, that ME could only be treated psychologically. Listening to my symptoms would encourage what he regarded as my “false illness” belief, so, after exclusion tests in hospital, he didn’t. I was bedridden and unable to feed myself. His advice was to go shopping.
It is typical of a complete lack of respect for ME patients.
There is no cure – the government NICE guidelines [now under review] offer “one-size-fits-all” mental health therapies that have fractional recovery rates for ME – and are oversold far beyond the evidence base. If psychological treatments were effective we’d all be doing them and getting better – but we’re not.
Cancer can be fatal, but at least you have a chance. ME is a “living death” for those who are the most seriously affected by it.
We need funding for research – which is why we need ME awareness days like the 12th of May.
Thanks for taking the time to read this.